Young caregivers' experience of the end of life and the death of a loved one
The video of the January 8 webinar is online.
Presentation of the initial results of a qualitative research study on the specificities of bereavement among young adult caregivers (18-25 years) and their experience of end-of-life situations of the loved one being cared for.
In France, almost 500,000 young carers (under 18) and young adult carers (under 25) provide significant, regular help to a loved one who is ill or suffering from a disability. Nevertheless, few studies have qualitatively explored their experiences, particularly with regard to end-of-life situations and the death of the loved one being cared for. As part of an exploratory study, semi-structured interviews were conducted with young adult carers whose loved one had died, and subjected to a thematic content analysis.
The aim of these interviews was to explore their experiences of the help provided on a daily basis from the time of the diagnosis announcement until the time of the loved one's death, considering the emotions felt during the end-of-life period, the difficulties encountered, and the needs and resources expressed by these young people. The study also explored the way in which they experience the bereavement of the loved one being helped.
This research was funded as part of the AMI Fin de vie 2021 of the Plateforme nationale pour la recherche sur la fin de vie, as well as by the Société française d'accompagnement et de soins palliatifs (SFAP), with the collaboration of the national association Jeunes AiDants Ensemble (JADE).
Speakers:
- Morgane MESPLÈDE, research psychologist, SFAP/Jeunes Aidants Ensemble
- Cécile FLAHAULT, maître de conférences HDR, Université Paris Cité
- Nicolas EL HAÏK-WAGNER, doctoral fellow in sociology, Cnam
- Jade PILATO, psychologist and doctoral student in psychology, Université Paris Cité.