Consortia
Four interdisciplinary research consortia have been formed.
The call for applications to form consortia from the Interdisciplinary EoL Research Program was a resounding success, with 78 letters of intent collected when it closed on June 10 (cf. article published on our site).
An international scientific committee comprising experts from Switzerland, Belgium, Canada, Spain and the UK selected 25 projects from these applications on the basis of their scientific ambition, innovative character and interdisciplinary and participatory potential. These projects have been grouped together to form four interdisciplinary research consortia whose work will aim to transform the way we look at, practice and learn about the End-of-Life.
Suffering and experiences at the End-of-Life
This consortium brings together ten projects studying the multiple forms of suffering (physical, psychological, social and spiritual) in various care contexts. It aims to make visible suffering that is often unrecognized because it is poorly identified, and to strengthen professionals' ability to respond to it.
| Nancy KENTISH-BARNES | Famiréa, Saint-Louis Research Institute, AP-HP |
| Laure GAZAIGNE | Groupe hospitalier Diaconnesses Croix Saint Simon |
| Chloé PROD'HOMME | Laboratoire METRICS ULR 2694, Université de Lille, CHU de Lille |
| Alaa MHALLA | CHU Henri-Mondor, AP-HP |
| Philippe WALKER and Sophien HORRI | respectively CHU de la Réunion and Université de La Réunion |
| Flora TREMELLAT-FALIERE | CHU de Nice - Université Côte d'Azur |
| Thomas BONNET and Elise PERCEAU-CHAMBARD | for the EN VIE Consortium, respectively Université Lyon2 and Hospices civils de Lyon - Université Lyon 1 |
| Julie ONCLE | CHU Amiens-Picardie, Université de Picardie Jules Verne |
| Nicolas PUJOL | For the SPIPAIN team |
| Laure SERRESSE | For the FHU BREATH, UMR_S 1158, Inserm AP-HP, Sorbonne Université |
Video : Presentation of the Souffrances et expériences vécues en fin de vie consortium by Laure SERRESSE, MCU-PH in palliative medicine (AP-HP, Sorbonne Université) and Nancy KENTISH-BARNES, sociologist (Famiréa, AP-HP), at the launch of the Interdisciplinary EoL Research Program, on March 9, 2026 in Paris.
End-of-life trajectories
The six projects brought together explore the diversity of end-of-life experiences, both in mainland France and in the overseas territories, as well as the social, cultural and territorial determinants that shape pathways. They analyze existing models (hospital, home or institutional) and propose new ones, drawing in particular on primary care and citizen initiatives such as "self-help collectives"1.
| Sophie PENNEC | Institut national d'études démographiques - Ined |
| Laurianne DO SANTOS | Maison des sciences de l'homme du Pacifique, UAR 2503 CNRS - Université de la Polynésie française |
| Johanne SAISON | Université de Lille |
| Nora MOUMJID | Université Lyon 1 - Centre Léon Bérard |
| Véronique MERLE | Groupe Hospitalier du Havre, Inserm U1086 Anticipe |
| Emmanuel BAGARAGAZA | Maison médicale Jeanne Garnier |
- Local network of citizens, associations, institutions and professionals who organize themselves to accompany people in end-of-life situations, serious illness, fragility or bereavement.
Video: Presentation of the Trajectoires en fin de vie consortium by Sophie PENNEC and Johanne SAISON at the launch of the Interdisciplinary EoL Research Program, March 9, 2026 in Paris.
Anticipation and planning
Anticipating end-of-life issues and care improves patients' quality of life, yet access to care remains late. The five selected projects aim to develop tools, professional practices and organizational approaches that promote earlier, more shared planning for the end of life. They draw on human organizations, physical devices or digital tools.
| Bettina COUDERC | UMR 1295 Inserm Université de Toulouse |
| Marie BOURGOUIN | Toulouse University Cancer Institute |
| Lucie SOURZAT | Toulouse Law School, Toulouse Capitole University, EDT-R / IDETCOM |
| Matthieu FRASCA | BPH Inserm U1219 |
| Francesca MININEL | Team CaLIPSo, UMR 1252 SESSTIM and Institut Paoli - Calmettes) |
| Fabien VISADE | Groupement des hôpitaux de l'institut catholique de Lille, ULR 2694 METRICS - Université de Lille |
| Rozenn LE BERRE | EA 7446 ETHICS - Center for Medical Ethics, Institut catholique de Lille |
Video: Presentation of the KAIROS consortium by Matthieu FRASCA, PhD in Public Health, BPH (UMR 1216) - University of Bordeaux, and Lucie SOURZAT, PhD in Law, EDT-R/Department IDETCOM-EDD-UNiversité Toulouse Capitole, at the launch of the Interdisciplinary EoL Research Program, March 9, 2026 in Paris.
Death wishes at the end of life
The four projects in this consortium examine the expression of death wishes through an interdisciplinary approach. They shed light on the clinical, relational, psychological, social and ethical dimensions, in order to improve support for patients, relatives and professionals faced with these requests.
| Mathilde GIFFARD | CIC Inserm 1431, Éthique et Progrès axis, CHU de Besançon |
| Léonor FASSE | for the Laboratory of Psychopathology and Health Processes, Université Paris-Cité |
| Isabelle COLON DE CARVAJAL | for the ICAR laboratory, ENS, Lyon |
| Guillaume GRANDAZZI | for the Centre de recherche risques et vulnérabilités, Université de Caen |
Video: Presentation of the Wishes to die consortium by Léonor FASSE, HDR lecturer in psychology (LPPS, UR 4057, Université Paris Cité, Hôpital Gustave Roussy) and Mathilde GIFFARD, lecturer - hospital practitioner in palliative medicine (CIC INSERM 1431, CHU de Besançon), at the launch of the Interdisciplinary EoL Research Program, March 9, 2026 in Paris.