Organization
The board
Adrien EVIN
Platform co-chair
University lecturer and hospital practitioner in palliative medicine
Palliative and support care department, Nantes University Hospital
Sarah CARVALLO
Platform co-chair
Professor of Philosophy of Science at Université Claude Bernard Lyon 1
Researcher at the research unit Sciences, society, historicity, education and practices (S2HEP) UR 4148
Aurore PERNIN
Head of French National Platform for End-of-Life Research
Maison des sciences humaines et environnementales (MSHE) Ledoux, UAR 3124 CNRS, Université Marie et Louis Pasteur
Laurent CALVEL
Associate Professor of Palliative Medicine, Strasbourg University Hospitals
President of the Collège national des enseignants pour la formation universitaire de soins palliatifs (CNEFUSP),
Clément CORMI
Head of the Interdisciplinary End-of-Life Research Program
Guillaume ECONOMOS
University lecturer and hospital practitioner in palliative medicine
Hospices Civils de Lyon
EA 3738 Centre pour l'Innovation en Cancérologie de Lyon - UCBL1
Clémence GUILLERMAIN
Doctor of History and Philosophy of Science and Technology
Post-doctoral researcher at Nantes Université, UAR 3491 Maison des Sciences de l'Homme Ange Guépin
Sophie PENNEC
Co-chair of the Platform's Scientific Council
Research Director at the Institut national d'études démographiques (INED)
Adjunct Associate Professor at The Australian National University (ANU, Australia)
Matthieu LE DORZE
Co-chair of the Platform's Scientific Council
Practitioner in Hospital, Réanimation Chirurgicale Polyvalente - Département d'Anesthésie-Réanimation des Hôpitaux Universitaires Saint-Louis - Lariboisière, Coordination Hospitalière des Prélèvements d'Organes et de Tissus, UMR 942 INSERM - MASCOT
Marie MAZEROLLE
Director of the Maison des Sciences Humaines et Environnementales (MSHE, UAR CNRS 3124)
Professor of Psychology at the Université Marie et Louis Pasteur
Researcher at the Laboratoire de recherches Intégratives en Neurosciences et psychologie Cognitive (LINC, UMR INSERM 1322)
Operational team
The operational team consists of the Platform's two co-chairs: Sarah CARVALLO and Adrien EVIN , as well as :
Aurore PERNIN
Head of Platform
Sophie AUPET
Project Officer – Observatory, National Network, and Calls for Projects
Delphine GOSSET
Scientific Communication and Research Promotion Officer
Mathieu ETOURNEAU
Financial manager
Scientific Council
The Scientific Council is tasked with:
- defining priority research directions,
- defining the scope of end-of-life research,
- playing an expert role for calls for projects, publications, bibliometrics, etc...,
- promote research and research training by relaying information.
The Scientific Council is co-chaired by Sophie PENNEC and Matthieu LE DORZE (see above) and also includes the Platform's co-chairs.
The other members are:
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Régis AUBRY
(guest member)
Pilot of the Interdisciplinary End-of-Life Research Program
Former president and founder of the French National Platform for End-of-Life Research
Michel CASTRA
Professor of Sociology at the University of Lille
Director of the Centre de recherches "individus, épreuves, sociétés" - CeRIES
Member of the Société française de sociologie
Stéphane CHARPIER
Professor at Sorbonne Université
Team leader at the Institut du Cerveau et de la Moelle épinière (ICM - Paris)
Gizèle CHVETZOFF
Medical oncologist and palliative care physician, head of the supportive care department at the Centre Léon Bérard in Lyon
Associate professor of palliative medicine and member of the Reshape U1290 laboratory at Université Claude Bernard Lyon 1
Sarah DAUCHY
Psychiatrist
President of the National Center for Palliative and End-of-Life Care (CNSPFV)
Isabelle DESGUERRE
Neuropediatrician at CHU Necker
Professeur des universités, praticien hospitalier (PU-PH), Neuropediatrician at Necker Hospital,
Member of the PALIPED Board (Île-de-France regional pediatric palliative care resource team)
Representative of the Société Française de Pédiatrie (SFP) and the Société Française de Neuro-Pédiatrie (SFNP)
Antoine ELYN
Research physician specializing in palliative care and epidemiology, at the National Center for Palliative Care Development at the University Hospital of Iceland (Landspítali)
Representative of the'International Collaboration for Best Care for the Dying Person
Leonor FASSE
Clinical psychologist at the Psycho-Oncology Unit of Gustave Roussy Hospital
Lecturer at the University of Paris, Institut de Psychologie, Laboratoire de Psychopathologie et Processus de santé
Representative of the Association francophone de psychologie de la santé (AFPSA)
Patient association representative
Roger SALAMON
Professor Emeritus in Public Health at the University of Bordeaux
Honorary Director of the Institute of Public Health, Epidemiology and Development (Isped), University of Bordeaux
Representative of the Association of French-speaking Epidemiologists - ADELF
Photo credit Gautier DUFAU
Dominique JACQUEMIN
Professor at the Faculty of Theology
Université Catholique de Louvain
Director of the Réseau santé, soins et spiritualités - RESSPIR
Florence JUSOT
Professor of economics - Université Paris Dauphine
Laboratoire d'économie de Dauphine (LEDA-LEGOS)
Researcher associated with the Institut de recherche et documentation en économie de la santé
Representative of the Collège des économistes de la santé
Phil LARKIN
Responsible for the Kristian Gerhard Jebsen Chair of Palliative Care Nursing within the Palliative and Supportive Care Service of the CHUV in Lausanne - Director of the Institut universitaire de formation et de recherche en soins (IUFRS)
Former President of the European association for palliative care - EAPC
Martine LE FRIANT
Professor of Law at the University of Avignon
Member of the Comité consultatif national d'éthique - CCNE
Marie-France MAMZER
Professor of Ethics and Forensic Medicine
UMRS 1138 ETREs CNRS-INSERM- Université Paris Descartes
Representative of the French Society of Forensic Medicine
Thierry MARTIN
University professor emeritus at the Université de Franche-Comté
Representative of the Société de philosophie des sciences (SPS)
Jean-Christophe MINO
Public health physician and HDR researcher
Institut Curie and Institut Siel Bleu
Teacher at the "Ethics" university department of the Sorbonne University medical school
Representative of the Société française de santé publique
Alexandre MOINE
Professor of Geography, Laboratoire THEMA UMR 6049 CNRS, Université Bourgogne Franche-Comté
Representing the Community of French Geographers
Marie-Laure MOQUET-ANGER
University professor
Responsible for the Health Law major and master's degree at Rennes 1 University
Honorary president of the French Health Law Association (AFDS)
Anne-Marie MOTTAZ
Nurse - nursery nurse, teaching health executive, PhD in Education and Training Sciences
Vice-president of the Association de recherche en soins infirmiers (ARSI)
Eric VERIN
Representing the Société médecine physique et réadaptation
Stéphanie PIERRE
Health advisor in charge of "End of life" topic, France Assos Santé
Michael RERA
Research professor, UMR 8256 - Adaptation Biologique et Vieillissement, Institut de Biologie Paris-Seine.
Benjamin ZUBER
Representative of the Société de réanimation de langue française - SRLF
Catherine ROUSSEL
Scientific Director of the Société française d'accompagnement et de soins palliatifs (SFAP)
Matthieu DE STAMPA
Geriatrician at the Centre gérontologique départemental de Marseille
Centre de recherche en épidémiologie et santé des populations - CESP (U-1018 INSERM, PS UVSQ)
InterRAI Consortium
Axelle MANEVAL VAN LANDER
Professor, Co-director UR ACCePPT, HDR, Psychologist
Delphine BALIZET
Representative of the Société française de soins palliatifs pédiatriques (2SPP)
Clinical psychologist, Équipe ressource régionale en soins palliatifs pédiatriques, CHU de Besançon.
Raphaël GOUREVITCH
Psychiatrist
Head of the CPOA-SMPR-PsyLine Unit at GHU Paris Psychiatrie et Neurosciences, Hôpital Sainte-Anne
Representative of the Société Médico-Psychologique
Maguerite D'USSEL
Pain physician
Head of Department of the Chronic Pain Center at Paris Saint-Joseph Hospital
Secretary General of the French Society for the Study and Treatment of Pain (SFETD)
Elsa MHANNA
Hospital practitioner in neurology, Hôpital Avicenne (AP-HP), Bobigny
Responsible for the Ethics Working Group of the French Society of Neurology
Member of the Bureau of the French Society of Neurology
Dominique BOUCHARD
Medico-surgical proctologist
Head of the proctology department Bagatelle Hospital Talence
Secretary General of the French National Society of Colo-proctology
Rozenn LE BERRE
Doctor of philosophy
Lecturer at the Centre d'Ethique Médicale - EA 7446 ETHICS, Institut Catholique de Lille
Editor-in-chief of the journal Médecine palliative
Frédéric BALARD
Socio-anthropologist
Lecturer at the University of Lorraine
Researcher at the Sociology Laboratory of Territories, du travail, des âges et de la santé (TETRAS)
Qualified personality of the Observatoire national du suicide