Conducting research in the field of health: ethical issues and practical procedures

The RGPD law, published in 2018, has come to reinforce the accountability of research organizations with regard to health data, and in so doing has considerably burdened and restricted the way in which SHS research in the field of health can now be carried out. Yet the logic and modalities of socio-anthropological research are not always compatible or easy to articulate with the new health laws (collection and use of sociographic data, access to the field and to vulnerable people, etc.), and this has repercussions on the way surveys and research fields are constructed.

These ethical and methodological issues question and sometimes hinder the work of social science researchers, both upstream of their research (preparation of research protocols, access to the field, etc.), and right through to its finalization (processing and restitution of data, publication of results, etc.).
So how does one navigate this environment and these regulations when starting a research project involving access to healthcare data? This seminar aims to bring young researchers encountering methodological and ethical issues into dialogue with speakers specializing in these questions and issues, in order to produce a number of shared resources and tools for reflection.

To follow the seminar:
https://bbb.unistra.fr/b/gou-ypg-hbx-0tu