Talking about end-of-life and death with people losing their autonomy
The video of the "rendez-vous de la recherche sur l'autonomie" organized on April 30 by the CNSA in collaboration with the Plateforme nationale pour la recherche sur la fin de vie is now available.
Sabine JOBEZ, project manager at the Plateforme nationale pour la recherche sur la fin de vie presents the results of a literature review on the conditions under which dependent and disabled elderly people discuss end-of-life issues with family caregivers or professionals, and this in a non-hospital setting.
The review seeks, in addition, to identify gaps in the existing literature. It uses the PRISMA methodology and encompasses publications in English and French, from the year 2000 to March 2023, in the fields of social sciences.
The review also seeks to identify gaps in the existing literature
A total of 28 articles were included. The results of these contributions tend to indicate that discussions of end-of-life issues are infrequent due to a variety of problems encountered in the process, the main one emanating from communication difficulties linked to the disabilities of this population.
At the end of the life cycle, it's important to be aware of the risks involved
Despite the diversity of disabled and elderly populations, the majority of publications focus on specific subgroups, namely frail elderly people with or without mild dementia and people with mild intellectual disabilities, leaving a significant part of the target population unexplored.
These results are discussed with Marie-Odile VINCENT, psychologist, director of the EHPAD Jacques Bonvoisin in Dieppe.
Published May 22, 2024