European projects ERC Consolidator grants
CONT-END
2018-2025
In late-life dementia, cognitive and physical decline means that control is usually lost. CONT-END will examine control in the context of three emerging interventions that contain a controversial element of control-seeking in the dementia death process: advance planning of end-of-life care, the use of new technologies to monitor symptoms when self-reporting is impossible, and euthanasia. Control will be examined at the level of clinical practice, but also at the level of end-of-life research practice. Indeed, research models are often flexible, and the aim is to study whether and how this has an impact on research in an emotionally-charged field. A mixed-methods empirical approach will enable both practices to be studied in parallel.
Host institution: Academisch Ziekenhuis Leiden (Netherlands)
For more information:
https://cordis.europa.eu/project/id/771483
Datahub of ERC funded projects (easme-web.eu)
C-POS
2018-2024
Person-centered care is a core value of modern healthcare. The primary aim of the Children's Palliative care Outcome Scale (C-POS) is to develop and validate a person-centered outcome measure for children, young people and their families affected by life-limiting and life-threatening illnesses. International systematic reviews and clinical guidelines have shown that none currently exists. This groundbreaking study will bring together a unique multidisciplinary collaboration to develop new methods, enabling engagement in outcome measurement by a population currently neglected in research. C-POS is supported by an international work program. Sequential mixed methods will provide substantial data The C-POS is an ambitious study which, for the first time, will measure the outcomes of person-centred care. It will be a turning point in the scientific study of a hitherto neglected group.
Host institution: King's College London (UK)
For more information:
https://cordis.europa.eu/project/id/772635
https://www.kcl.ac.uk/cicelysaunders/research/outcome/pos/children's-pa…
MORTAL
2021-2026
The aim of MORTAL is to challenge current non-empirical narratives and produce fundamentally new knowledge about the mechanisms underlying mortality trends. The health and longevity of a population is a key barometer of general well-being, reflecting the cumulative effects of the wider social, economic and environmental conditions in which people live. Recently, demographic alarm bells have been sounded by declining life expectancy in the USA and stagnating mortality in the UK and other parts of Europe. Whether these trends are due to short-term causes such as "deaths of despair" from drugs, alcohol and suicide, or to longer-term changes in risk factors such as obesity, remains unclear, and some work in this area has lacked empirical rigor. For the first time, MORTAL will combine theory and data from several disciplines (biology, epidemiology, sociology, economics, genetics) with demographic theory on the challenging three-dimensional age-period-cohort space in which mortality trends emerge to understand the underlying drivers of population mortality. Building a model from cell to society and across age, period and cohort, MORTAL will integrate insights from disparate disciplines to answer the vital question: as populations, how long do we live, and why?
Host institution: The Chancellor, Masters and scholars of the University of Oxford (UK)
For more information:
https://cordis.europa.eu/project/id/101002587
Datahub of ERC-funded projects (easme-web.eu)