Online conferences
Research guidelines for France on medical aid in dying
As France prepares to legalize medical aid in dying, this topic is gaining increasing importance in public health, as well as in end-of-life research.
In Belgium, this practice has been studied for over 25 years. Despite this long tradition, significant gaps remain. Professor Joachim COHEN presents Belgian research and proposes potential directions for future research projects in France.
Speaker:
Joachim COHEN, Professor of Public Health and Palliative Care at Vrije Universiteit Brussel (Belgium) and member of the End-of-Life Care Research Group.
Secularity and religious rituals at the end of life in Japan
What are Japan's traditional conceptions of death and religion? How have they evolved? As a result, how has the way Japanese people die changed? The recurring theme of this conference is how to guide the soul of the dying and properly treat their remains. Professor Kasai illustrates this reflection through the example of Buddhism.
Speaker:
Kenta KASAI, Ph.D., Professor, the Graduate School for Applied Religious Studies, Sophia University;
Senior Fellow at the Institute of Grief Care, Sophia University
Young caregivers' experience of the end of life and the death of a loved one
In France, nearly 500,000 young caregivers (under 18) and young adult caregivers (under 25) provide significant and regular help to a loved one who is ill or suffering from a disability. Nevertheless, few studies have qualitatively explored their experiences, particularly with regard to end-of-life situations and the death of the loved one being cared for. As part of an exploratory study, semi-structured interviews were conducted with young adult carers whose loved one had died, and subjected to thematic content analysis.
The aim of these interviews was to explore their experiences of the help provided on a daily basis from the time of the diagnosis announcement until the moment of the loved one's death, considering the emotions felt during the end-of-life period, the difficulties encountered, and the needs and resources expressed by these young people. The study also explored how the latter experience the bereavement of the loved one being helped.
This research was funded as part of the AMI Fin de vie 2021 of the Plateforme nationale pour la recherche sur la fin de vie, as well as by the Société française d'accompagnement et de soins palliatifs (SFAP), with the collaboration of the national association Jeunes AiDants Ensemble (JADE).
Speakers:
- Morgane MESPLÈDE, research psychologist, SFAP/Jeunes Aidants Ensemble
- Cécile FLAHAULT, lecturer HSR, Université Paris Cité
- Nicolas EL HAÏK-WAGNER, doctoral student in sociology, Cnam
- Jade PILATO, psychologist and doctoral student in psychology, Université Paris Cité.
The challenges of mainstream schooling for students in palliative situations
In the collective imagination, a sick or palliative child does not continue to attend school. They may, however, wish to continue their schooling in an ordinary environment. In such cases, the regional pediatric palliative care resource teams (ERRSPP) offer to support the child's plans. For teachers, who are at the heart of the student's school life, this type of situation is likely to generate stress and anxiety. And yet, the more the teaching team feels supported, the better the experience will be for the young person and his or her family. The aim of the qualitative study to be presented at this webinar is to explore the representations, experiences and practices of primary and secondary school teachers with regard to support for pupils who are ill and in palliative situations at school, a priori and a posteriori, and to provide leads for adjusting support for teachers faced with these situations. By offering a fairly broad description of the experience and representations of support for serious illness and the end of life in the school environment, this study provides clues to guide information, awareness-raising and training approaches for players in the world of education and school medicine, but also for external players such as ERRSPPs.
This research was launched by the Young Generations working group of the Société française d'accompagnement et de soins Palliatifs (SFAP), in partnership with the Laboratoire de psychopathologie et processus de santé at the University of Paris and the Société de soins palliatifs pédiatriques, thanks to support from Helebor.
Intervenors:
- Marie SONRIER, clinical psychologist and researcher
- Nicolas EL HAÏK WAGNER, co-leader of SFAP Young Generations
- Cécile FLAHAULT, HSR lecturer in psychopathology - LPPS, University of Paris
- Camille REICHLING, clinical psychologist, ERRSPP PACA Ouest (Marseille)
Scandal at Paris Descartes University and "misuse" of bodies donated to science?
This conference on March 29, 2022 tackles the subject of "useful death".
The question of body donation will be addressed using the example of Paris Descartes and the scandal that took place, showing how this scandal sheds light on the existing gap around representations of the usefulness of the body in the scientific context and the perception of it by the general public and donors' families. This confrontation also engages the question of the "dignified treatment" (including the demand for funeral treatment) of dead bodies that have been donated.
Intervenants:
- Valérie ROBIN AZEVEDO, professor of social and cultural anthropology at the University of Paris Descartes, member of URMIS, scientific leader of the ANR Transfunéraire research program. In 2020, she published [Im]matérialités de la mort (CNRS Editions).
- Clara DUTERME, research engineer in social anthropology at Aix-Marseille Université, ADES UMR 7268, manager of the ANR Transfunéraire research program.