EOI Webinars
SASPPAC
The increase in cancer among the elderly is leading to a growing need for supportive oncology care and inpatient palliative care in this population. The determinants of access to this care remain poorly described. The aim of the SASPPAC project is to quantify the effect of somatic, psycho-existential and socio-familial dimensions on the use of this care, based on data from the ELCAPA cohort of elderly people with cancer in Île-de-France. A preliminary selection of the variables needed to estimate these dimensions in these patients is required. For this preliminary work, an interdisciplinary group (epidemiologist, physician, psychologist) with expertise in oncology, geriatrics and palliative care will be set up. It will select factors based on health concepts, literature, expert opinion and ELCAPA data. This selection will be statistically validated. The results will be published to support the SASPPAC project, for which funding applications will then be submitted.
Speaker: Matthieu FRASCA
SPARK
Internationally, the theme of "neuropalliative care" is enjoying growing interest, particularly in Parkinson's disease (PD). On a national scale, however, few studies have been carried out in this field. Indeed, the conditions (i) of access to palliative care and (ii) of end-of-life care for PD patients have hardly been described to date - with the exception of preliminary studies carried out in Brittany as part of the APO-PALLIA project. What's more, there are no guidelines for practices, which vary from center to center. The creation of the SPARK network, associating Rennes and Besançon, aims to overcome these shortcomings through an interdisciplinary approach combining the expertise of these teams (research, neurology, ethics, palliative care, pharmacology & health data).
Speakers: Manon AUFFRET, Matthieu BEREAU
MODES
The reality of end-of-life, death and bereavement often intrudes into the school setting, but remains an unthought-of issue in educational policies, school health and the training of teachers and health and social action staff. MODES is a research project in psychology, socio-anthropology and education sciences focusing on "end of life, death and bereavement in schools", with an international comparative perspective (France, Switzerland, Quebec). The aim is to explore the schooling of young people in palliative situations in an ordinary environment, the functions and meaning of ritualizations in the school environment after a death, as well as the mourning process among young carers, its possible specificities and to question the role played for them by the school in this context.
Speakers: Nicolas EL HAÏK-WAGNER, Cécile FLAHAULT
Stories
The aim of this research is to think about setting up a multidisciplinary platform (in digital and face-to-face form in hospitals and palliative care departments) that will propose various projects for which storytelling will have an accompanying function in the palliative approach. Researchers from a number of disciplines (medicine, psychology, creative writing, literature and visual culture, anthropology, law, philosophy, etc.) will collaborate on the development of this platform.
Speakers: Mathieu SIMONET, Michèle LEVY-SOUSSAN