C-POS
Children's Palliative care Outcome Scale
Person-centered care is a core value of modern healthcare. The primary aim of the Children's Palliative care Outcome Scale (C-POS) is to develop and validate a person-centered outcome measure for children, young people and their families affected by life-limiting and life-threatening illnesses. International systematic reviews and clinical guidelines have shown that none currently exists. This groundbreaking study will bring together a unique multidisciplinary collaboration to develop new methods, enabling engagement in outcome measurement by a population currently neglected in research. C-POS is supported by an international work program. Sequential mixed methods will provide substantial data The C-POS is an ambitious study which, for the first time, will measure the outcomes of person-centred care. It will be a turning point in the scientific study of a hitherto neglected group.