Caring for Death

The SlaMOR project, funded by RnMSH,is linked to the ADAPTER and DanSERA projects.

The holding of workshops (ADAPTER and DanSERA) concretizes the hindrances and obstacles of hospitalists, which prompts us to address two avenues 1. to better identify the capacity of hospital teams to reflect on direct dialogues between dying people and caregivers; 2. to better understand the virtues of supporting hospital staff (neurology, oncology, in particular) in conceiving the value of using advance directives from patients (PSP, ALS) or ordinary patients regarding the varied conditions of dying [1].

In phase 1, this will involve a field survey of caregivers' representations (perceptions and feelings) on the issue of direct dialogue with their dying; a collection, over time, ethically cared for, of authentic caregivers' words. In phase 2, it will be a question of confronting the representations (oral collected and analyzed) with the authentic fears of situated patients as to their pathology or conditions of hospitalization or conditions of trepidation. Will be taken into account the writing (effective or not) of advance directives. Phase 3 will compare the materials collected with the effectiveness of renewed training conditions with hospitalists or doctors in initial training, training which will be simulated or tested.

[1] N.B.: the question of legislation will not be addressed in this project.

Topics
Disciplines
Keywords
  • End-of-life care
  • Support in the agonic phase
  • End-of-life support for the disabled
Acronym
SlaMOR
Start date
2022
Status
Completed, currently being evaluated
Project lead(s)
Emmanuèle AURIAC-SLUSARCZYK
Margot SMIRDEC
Funders
  • RnMSH - Réseau national des Maisons des sciences de l'homme
Title of the call for proposals
  • AAP inter-MSH
Lead organisation for the project
  • Maison des Sciences du l'Homme de Clermont et Université Clermont Auvergne
Project team
  • Margot SMIRDEC
Partner organisations
Réseau national des Maisons des Sciences de l'Homme
MSH de Clermont Ferrand
Laboratoire Acté Université Clermont Auvergne
MSH de Lorraine
Laboratoire L2PN
MSH Bretagne
Laboratoire Préfics
Centre Jean Perrin Oncologie Dir. Frédérique Penault-Llorca
CHU 63 Dr Neurologie. Responsable du CRCSLA. GUY Nathalie
Contact
Emmanuèle Auriac-Slusarczyk
emmanuele.auriac@uca.fr
06 30 36 56 44
ou Claire Couly claire.couly@univ-tlse2.fr
[Appel à Manifestation d’Intérêt (AMI) du Réseau national des Maisons des Sciences de l’Homme dans le cadre du dispositif HS3PE crise crises sanitaires et environnementale -Humanités, sciences sociales, santé publique-]