Marion CLAES

Contact
CCU-AH
Île-de-France
Assignment
  • Centre de recherche en Epidémiologie et Santé des Populations
    CESP / U 1018
    Université Paris Saclay
    Espace éthique Ile-de-France Hôpital Saint Louis
    1 avenue Claude Vellefaux
    75010 PARIS
  • Equipe mobile de Soins Palliatifs
    Hôpital Lariboisière
    2 rue Ambroise Paré
    75010 PARIS
Disciplines
Research topics
Keywords
  • Access to palliative care
  • Neurodegenerative diseases
  • Supporting caregivers
  • Palliative anticipation
Pathologies
Populations
Types de recherche
Research activities

Early palliative care and anticipatory discussions around care projects involving patients are a focus of palliative care development in France. In the context of progressive neurocognitive diseases, these practices are not yet widespread across the country.

Objectives of our various studies:

To better understand current practices for anticipating disease progression among patients with progressive neurocognitive pathologies (Alzheimer's, Parkinson's, Lewy Body disease, ...).

Evaluate the palliative support needs of patients and their families, particularly those suffering from early-onset forms in young subjects and rarer diseases

Develop an intervention for early discussion of care projects in conjunction with referring specialists.